Inspired Comforts

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[SAMPLE — for review] Just-diagnosed: questions to ask your oncologist (template preview)

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This is a preview of one of our new Inspired Comforts Toolkit templates. Format approved; updated copy below.

Inspired Comforts Toolkit

These are questions real patients describe wishing they had asked at their first oncology appointment. Use them as inspiration. Bring your own list. The right question is the one that matters to you. Print this page, write your answers in the lines, and bring a partner or friend to take notes if you can.

About the diagnosis

  1. What is the exact name of my diagnosis, including type and subtype?
  2. What stage is it, and what does that mean for my situation?
  3. What does the pathology report tell us about the tumor (markers, grade, receptor status)?
  4. Are there other tests I still need (genetic, imaging, biopsy)? When?

About treatment options

  1. What are my treatment options, and what is the goal of each?
  2. What treatment do you recommend for me, and why?
  3. Are there clinical trials I should consider?
  4. Should I get a second opinion? How do I do that?
  5. What are the side effects, both short-term and long-term?

About timeline

  1. When does treatment start, and how long will it last?
  2. How often will I have appointments, and how long is each one?
  3. What does a typical treatment day look like?
  4. When will we know if treatment is working?

About logistics and life

  1. Will I be able to work? Drive? Live alone? Care for my children?
  2. What restrictions will I have during and after treatment?
  3. Will I need a port, PICC line, or central catheter?
  4. Should I see anyone else now (fertility, dental, mental health)?

About support

  1. Who is on my care team — and who do I call for what?
  2. Is there a social worker, financial counselor, or patient navigator I can talk to?
  3. Are there local or online support groups you recommend?
A note on what this is. This article is general information drawn from the sources cited above and from real-patient experience patterns. It is not medical advice, not a diagnosis, and not a substitute for the guidance of your care team. Your situation is specific to you. Always discuss decisions about your treatment, medications, and care with your physician, surgeon, oncologist, nephrologist, OB, or relevant specialist. If you are experiencing symptoms that worry you, contact your medical team. In an emergency, call 911 or your local emergency number.
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